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UPDATE - Survivorship Programs

The five year relative survival rate for prostate cancer is close to 100 per cent. In other words – this is a highly curable disease.  For survivors, beating the disease is often only the first step, as recovery can result in a host of other challenges.  PCC’s goal is to support men and their families throughout their prostate cancer journey – diagnosis, treatment and recovery. 

In 2011 we took a close look at survivorship programs - what was currently available and what needed to be enhanced.  Our environmental scan helped us develop our focus for 2012; health education resources and support services.
Health Education Resources and Support Services 

In the last few years, focus has been placed on engaging patients in decisions about their medical care. Patient decision aids are tools that help people become involved in decision making by providing information about options and outcomes. They’re designed to complement, rather than replace, counselling from a health practitioner. 

Our scan noted that while there have been several decision tools researched, piloted and evaluated, a lack of funding and time have made them inaccessible to patients.  PCC plans on leading the way by bringing together key leaders for the development and implementation of these tools. 

In addition, self-management of care is emerging as a method of ensuring positive quality of life for those who take advantage of resources and programs. There are currently no programs available for self-management for those impacted by prostate cancer. 

PCC will help train and lead a group of volunteers who will be assigned to individuals and couples, to guide them through the process of self-care.  

Resources in Development

General Health Education Resources 

To help increase prostate cancer awareness, PCC will create a comprehensive suite of educational materials (i.e., pamphlets, fact sheets, and multimedia tools). PCC will engage individuals from clinical settings and relevant community groups to co-develop the resources and ensure they meet the needs of these individuals. 

Health Education Resources Adapted for Vulnerable Populations

In order to ensure that materials are culturally and linguistically sensitive, PCC will hold consultations with key leaders in vulnerable and at-risk groups including the Black, Hispanic, Gay and First Nations communities.  PCC will work together with members of these targeted communities to co-develop strategies, tools and resources. Resources will also be translated into other languages.


Posted: 2012-06-04 4:26:30 PM
Filed under: awareness, diagnosis, Education, PCC, prostate cancer, Resources, survivors


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