UPDATE - Survivorship Programs

 
The five year relative survival rate for prostate cancer is close to 100 per cent. In other words – this is a highly curable disease.  For survivors, beating the disease is often only the first step, as recovery can result in a host of other challenges.  PCC’s goal is to support men and their families throughout their prostate cancer journey – diagnosis, treatment and recovery. 

In 2011 we took a close look at survivorship programs - what was currently available and what needed to be enhanced.  Our environmental scan helped us develop our focus for 2012; health education resources and support services.
Health Education Resources and Support Services 

In the last few years, focus has been placed on engaging patients in decisions about their medical care. Patient decision aids are tools that help people become involved in decision making by providing information about options and outcomes. They’re designed to complement, rather than replace, counselling from a health practitioner. 

Our scan noted that while there have been several decision tools researched, piloted and evaluated, a lack of funding and time have made them inaccessible to patients.  PCC plans on leading the way by bringing together key leaders for the development and implementation of these tools. 

In addition, self-management of care is emerging as a method of ensuring positive quality of life for those who take advantage of resources and programs. There are currently no programs available for self-management for those impacted by prostate cancer. 

PCC will help train and lead a group of volunteers who will be assigned to individuals and couples, to guide them through the process of self-care.  








 
Resources in Development

General Health Education Resources 

To help increase prostate cancer awareness, PCC will create a comprehensive suite of educational materials (i.e., pamphlets, fact sheets, and multimedia tools). PCC will engage individuals from clinical settings and relevant community groups to co-develop the resources and ensure they meet the needs of these individuals. 

Health Education Resources Adapted for Vulnerable Populations

In order to ensure that materials are culturally and linguistically sensitive, PCC will hold consultations with key leaders in vulnerable and at-risk groups including the Black, Hispanic, Gay and First Nations communities.  PCC will work together with members of these targeted communities to co-develop strategies, tools and resources. Resources will also be translated into other languages.


 

Posted: 2012-06-04 4:26:30 PM
Filed under: awareness, diagnosis, Education, PCC, prostate cancer, Resources, survivors


Tags

Local Hero Award #oneineight #unhommesurhuit A Survivorship Action Partnership Active adt advanced Alex Baumann Annual Moose & Goose Club Black Tie Dinner antigen ASAP athlete awareness Beam bénévole biopsies biopsy Bismar blood BOSSS Tournament Boutros Brachytherapy Bristow british Buttyan Calgary Canada Cancer caregiver Carreauté catheter CFL charity Chemotherapy cherry cnic collaboration collage columbia Conor Malone Cruisin’ For A Cure Canada Dad Daddy dads Dakar Rally day de deprivation detection diagnosis diagnostiqué digital dna do Do it for Dads doctor don donate DRE early Early detection ED Edmonton Education erection eric Eskimos exam experience External family Father Father and Sons Xcanada Father’s Day Walk/Run Father's Day FDiagnosis Football for Fred Chartrand funding fundraising fundrasier gènes genetics Golf Town Charity Classic health High-Intensity history hockey Hope Hormone international it Jack Layton L’ADN la l'APS Len Levesque lifelabs lottery loved mccormack Media men's moustache moustachus Movember MRI Murray Hill national nationale navigator of Olivia Chow one ones papa partership Paul PCC PCC Atlantic PCCN pee Pilot Grant Program Plaid post-surgery pour pre-surgery prosate cancer Prostate prostate cancer Prostate Cancer Awareness Day Prostate Cancer Canada Prostate Cancer Canada Network Prostate Cancer Canada Network Conference prostatecancer Prostatectomy Protect the 5 Hole PSA PSA blood test PSA levels PSA test PSA value psatest Radiation Radical radioligand raffle Ralph Randy Remington Randy Remington Charity Golf Classic recipe recovery rectal remember Research researcher Resources Rhodes Ride Rising risk road Rob robyn Rocco Rocco Rossi rock Rocktheroadraffle Rossi run Scotiabank StickIt Scotiabank Stick-It screened screening semaine sexuality Sled specific Star step Step Up Steve Jones story Stuart Edmonds support surgery Surveillance survivant survivor survivors survivorship programs T2:ERG Tarek test Test de l'APS testdelAPS testing the The Breast Friends The Randy Remington Golf Classic Therapy TIEd Together TIEd Together photo exhibit Treatment tribute tumours up urine urine test urologist volunteer volunteering Volunteerism volunteers Wake Up Call Breakfast walk Walk Run week winner World

Archive

December 2019(1)
November 2019(2)
October 2019(2)
September 2019(7)
August 2019(6)
July 2019(5)
Juin 2019(0)
May 2019(5)
April 2019(4)
Mars 2019(5)
February 2019(6)
January 2019(4)
December 2018(1)
November 2018(1)
October 2018(3)
September 2018(4)
July 2018(2)
June 2018(1)
April 2018(2)
February 2018(2)
December 2017(2)
October 2017(1)
April 2017(2)
February 2017(1)
December 2016(2)
July 2016(2)
May 2016(1)
March 2016(1)
December 2015(1)
November 2015(1)
September 2015(1)
July 2015(1)
June 2015(1)
April 2015(2)
March 2015(2)
February 2015(2)
January 2015(2)
December 2014(4)
November 2014(2)
August 2014(1)
July 2014(2)
May 2014(2)
April 2014(1)
December 2013(2)
November 2013(3)
October 2013(1)
September 2013(6)
August 2013(2)
September 2012(4)
August 2012(1)
June 2012(1)
April 2012(1)
March 2012(3)
February 2012(2)
January 2012(1)
October 2011(1)
June 2011(2)
January 2011(1)
November 2010(6)
October 2010(3)
September 2010(3)
August 2010(4)
July 2010(2)
February 2010(3)
January 2010(1)